Welcome to the Haemnet Blog

Hi Everyone, Adam 13 seems to have retired so I've taken over this space to post news-related stuff. Please feel free to comment on it.

HNA and the public inquiry into infected blood

The HNA has issued the following statement in response to the announcement of a public inquiry to investigate historical cases of infection from blood and blood products. The Government has agreed to fund a full public inquiry into the circumstances that led to cases of infection from blood and...
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HNA and the public inquiry into infected blood...

But first … let me take a selfie?...

There’s a few things that spring to mind when you hear the word “selfie”. From Snapchat dog filters, tourists with annoying extendable poles, Ricky Gervais in the bath, or that awful “song” by The Chainsmokers, there is no doubt selfies have become an integral part of...
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But first … let me take a selfie?......

Kate stepping down from clinical practice

Kate Khair - hailed at last week's EAHAD meeting as the most famous haemophilia nurse in the world - will leave her consultant nurse post at London's Great Ormond Street Hospital (GOSH) in May 2018. But she will still remain very active in the world of haemophilia. Over the past 27 years...
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Kate stepping down from clinical practice...

As they say - 'there's no i in team'

There was a time when use of the term "multidisciplinary" in the context of haemophilia congresses meant the inclusion of a token nurse or a physiotherapist on a panel. This year's EAHAD congress, held in Madrid, had more nurses, physios and psychologists attending and presenting work...
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As they say - 'there's no i in team'...

A practical guide to switching factor concentrates post tender

In the UK, since 2004, there has been a national tender system for the purchasing of clotting factor concentrates managed by the Commercial Medicines Unit, a part of NHS England. This has led to significantly lower prices. The outcome of a new contract means that haemophilia centres have to commit...
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A practical guide to switching factor concentrates ...

Trish lights up Princess's Christmas tree

Decorating the tree is often a problem when you live in a massive old town house in the centre of London. This year, the lucky residents of Clarence House were able to call upon expert help from specialist nurses and the families they help. HRH The Duchess of Cornwall is patron of the Roald Dahl...
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Trish lights up Princess's Christmas tree...

Is it time to think beyond bleed rates?

It is reasonable to assume that all stakeholders in haemophilia care want the best health outcomes from every health care pound. Trouble is, each stakeholder has a unique perspective and different expectations. Speaking at a recent Bayer Healthcare Hematology Conference, Mark Skinner, President...
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Is it time to think beyond bleed rates?...

Haemophilia care at Mulago Hospital, Kampala, Uganda

Day 4 An early start today, giving ourselves plenty of time to navigate the Kampala morning rush hour. If you think London is bad, then you need to experience this! Our trusty driver, Vincent, snaked through the traffic with ease as we watched an impressive sunrise through a haze of exhaust fumes...
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Haemophilia care at Mulago Hospital, Kampala, Ugand...

Haemophilia in Uganda | Meeting the bleeding disorder community

This week I have been in Uganda, documenting the situation of haemophilia in the country. I have been meeting with various members of the community through connections made by Kate Khair over the last four years. Kate is a nurse consultant at Great Ormond Street Hospital (GOSH) in London, and has...
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Haemophilia in Uganda | Meeting the bleeding disord...

Psychologists bring specialist knowledge to enhance haemophilia practice

Many patients living with chronic conditions such as bleeding disorders will experience mental health issues at some stage in their life. Psychologists are increasingly seen as crucial members of the haemophilia MDT, offering specialist knowledge to help patients deal with issues that affect them...
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Psychologists bring specialist knowledge to enhance...




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