Welcome to the Haemnet Blog

Hi Everyone, Adam 13 seems to have retired so I've taken over this space to post news-related stuff. Please feel free to comment on it.

Haemophilia care at Mulago Hospital, Kampala, Uganda

Day 4 An early start today, giving ourselves plenty of time to navigate the Kampala morning rush hour. If you think London is bad, then you need to experience this! Our trusty driver, Vincent, snaked through the traffic with ease as we watched an impressive sunrise through a haze of exhaust fumes...
Read more...
Haemophilia care at Mulago Hospital, Kampala, Ugand...

Haemophilia in Uganda | Meeting the bleeding disorder community

This week I have been in Uganda, documenting the situation of haemophilia in the country. I have been meeting with various members of the community through connections made by Kate Khair over the last four years. Kate is a nurse consultant at Great Ormond Street Hospital (GOSH) in London, and has...
Read more...
Haemophilia in Uganda | Meeting the bleeding disord...

Psychologists bring specialist knowledge to enhance haemophilia practice

Many patients living with chronic conditions such as bleeding disorders will experience mental health issues at some stage in their life. Psychologists are increasingly seen as crucial members of the haemophilia MDT, offering specialist knowledge to help patients deal with issues that affect them...
Read more...
Psychologists bring specialist knowledge to enhance...

Benefits and beyond: exploring the diverse roles of social workers

Social workers sited in the haemophilia and bleeding disorder community from across the UK, recently got together for the day to explore their roles and share their experience. This day was hosted and facilitated by Haemnet as part of its support for the psychosocial members of the haemophilia team...
Read more...
Benefits and beyond: exploring the diverse roles of...

Let Haemnet help you “Find Your Voice”

Public speaking can be daunting but it is a rewarding experience that is increasingly important for haemophilia nurses seeking to establish their professional role. At this year’s HNA meeting, a workshop organised by Anne Wareing and Pamela Wick and supported by CSL Behring, sought to provide...
Read more...
Let Haemnet help you “Find Your Voice”...

No “clear and consistent evidence” of difference in inhibitor risk

There is no clear and consistent evidence of a difference in the incidence of inhibitor development between factor VIII products derived from plasma and those made by recombinant DNA technology. The Pharmacovigilance Risk Assessment Committee (PRAC) of the European Medicines Agency has now completed...
Read more...
No “clear and consistent evidence” of differenc...

Providing haemophilia care from Truro to Lands End and beyond

With so much focus on the haemophilia care provided by comprehensive care centres (CCCs) it’s sometimes easy to forget that for many people a visit to the haemophilia centre is a distinctly local affair. Few parts of the UK exemplify this better than Cornwall, a large and geographically...
Read more...
Providing haemophilia care from Truro to Lands End ...

Escape to the Magic Garden

My earliest memories of bleeds are not necessarily of the bleeds themselves but of the imaginary, mystical garden full of my favourite things that was my parent’s unique way of comforting me. It was not always fool proof; usually aided by gentle rubbing of the affected joint (predominantly my...
Read more...
Escape to the Magic Garden ...

Bowled Over by Basingstoke

There is more to haemophilia treatment centres than meets the eye. While I value the importance of a great multidisciplinary clinical team, I have come to realise that connecting with other lads my age who are on similar journeys really helps me to deal with the challenges of living with a bleeding...
Read more...
Bowled Over by Basingstoke ...

In the bleak midwinter – think Africa!

Think Africa; hot sunny weather, palm fringed beaches, weird wild animals … and haemophilia. I have, as many of you will know, a love of Africa and have been fortunate to visit Kenya, Uganda, Malawi and Ethiopia with either WFH or with the Novo Nordisk Haemophilia Foundation (NNHF...
Read more...
In the bleak midwinter – think Africa!...




Member Log in

Not a member? Register here

*


Thanks to our Partners

Haemophilia Nurses' Association

Haemnet is a nurse-led initiative endorsed by the Haemophilia Nurses Association and supported by Pfizer Ltd, Bayer, Baxter Healthcare Ltd, BPL, Biotest, Grifols, CSL Behring, Octapharma, SOBI, LFB and Novo Nordisk. Sponsors are not responsible for site content.

Find out more about becoming a Haemnet partner

  • Sobi
  • CSL Behring
  • Pfizer
  • Roche
  • Novo Nordisk
  • Baxalta
  • Bayer Healthcare
  • BPL
  • Grifols
  • Biotest
  • LFB
  • Octapharma
  • Ferndale