Welcome to the Haemnet Blog

Hi Everyone, Adam 13 seems to have retired so I've taken over this space to post news-related stuff. Please feel free to comment on it.

Inquiry terms of reference published

The Terms of Reference have been published for the public inquiry to investigate historical cases of infection from blood and blood products. They can be downloaded from here.  The Inquiry will examine why men, women and children in the UK were given infected blood and/or infected blood products;...
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Inquiry terms of reference published...

Nurse-led haemophilia care delivered in Glasgow

Every haemophilia conference contains talks stressing the importance of nurses, yet it remains, for the most part, a doctor-led specialty. The World Federation of Hemophilia 2018 congress in Glasgow last week gave us the opportunity to demonstrate the feasibility of a nurse-led service for haemophilia...
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Nurse-led haemophilia care delivered in Glasgow...

Creating environments that facilitate growth

So what can happen when you give colleagues the space to come together to share their experiences and expertise? The Haemnet experience over the past 18 months is that a lot can happen. Whether it be an exploration of the challenges and opportunities that new treatment options and an ageing population...
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Creating environments that facilitate growth...

HNA and the public inquiry into infected blood

The HNA has issued the following statement in response to the announcement of a public inquiry to investigate historical cases of infection from blood and blood products. The Government has agreed to fund a full public inquiry into the circumstances that led to cases of infection from blood and...
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HNA and the public inquiry into infected blood...

But first … let me take a selfie?...

There’s a few things that spring to mind when you hear the word “selfie”. From Snapchat dog filters, tourists with annoying extendable poles, Ricky Gervais in the bath, or that awful “song” by The Chainsmokers, there is no doubt selfies have become an integral part of...
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But first … let me take a selfie?......

Kate stepping down from clinical practice

Kate Khair - hailed at last week's EAHAD meeting as the most famous haemophilia nurse in the world - will leave her consultant nurse post at London's Great Ormond Street Hospital (GOSH) in May 2018. But she will still remain very active in the world of haemophilia. Over the past 27 years...
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Kate stepping down from clinical practice...

As they say - 'there's no i in team'

There was a time when use of the term "multidisciplinary" in the context of haemophilia congresses meant the inclusion of a token nurse or a physiotherapist on a panel. This year's EAHAD congress, held in Madrid, had more nurses, physios and psychologists attending and presenting work...
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As they say - 'there's no i in team'...

A practical guide to switching factor concentrates post tender

In the UK, since 2004, there has been a national tender system for the purchasing of clotting factor concentrates managed by the Commercial Medicines Unit, a part of NHS England. This has led to significantly lower prices. The outcome of a new contract means that haemophilia centres have to commit...
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A practical guide to switching factor concentrates ...

Trish lights up Princess's Christmas tree

Decorating the tree is often a problem when you live in a massive old town house in the centre of London. This year, the lucky residents of Clarence House were able to call upon expert help from specialist nurses and the families they help. HRH The Duchess of Cornwall is patron of the Roald Dahl...
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Trish lights up Princess's Christmas tree...

Is it time to think beyond bleed rates?

It is reasonable to assume that all stakeholders in haemophilia care want the best health outcomes from every health care pound. Trouble is, each stakeholder has a unique perspective and different expectations. Speaking at a recent Bayer Healthcare Hematology Conference, Mark Skinner, President...
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Is it time to think beyond bleed rates?...




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