Creating environments that facilitate growth

Creating environments that facilitate growth...

So what can happen when you give colleagues the space to come together to share their experiences and expertise? The Haemnet experience over the past 18 months is that a lot can happen. Whether it be an exploration of the challenges and opportunities that new treatment options and an ageing population bring; experiencing a feeling of camaraderie from not being alone and from exploring uncertainties with others in the same boat; being recognised and valued for the things we are doing; or creating...

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Save One Life

offers sponsorships directly to individual children or adults with a bleeding disorder in developing countries

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Academy-circle

Access

news, views and information

Haemnet offers a range of educational opportunities for haemophilia care professionals. These include:

Contemporary Care of People with Bleeding Disorders is a three-day residential, expert-led training course for health care professionals
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Aspire is Haemnet’s bespoke leadership development programme for all members of the multidisciplinary team. ASPIRE is run by trained experts in leadership training
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Haemophilia Nurses' Association Competency Framework

The HNA Competency Framework provides a widely respected guide to the career development of haemophilia nurses
Coming soon

The Journal of Haemophilia Practice is Haemnet’s open-access journal – a place where all members of the multidisciplinary team can share experience
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Care-circle

Build

skills and expertise

Managing haemophilia is about more than just administering factor treatment. Good all-round care provided by a multidisciplinary team is essential to prevent joint damage and to encourage those with haemophilia to live as near normal lives as possible.

Haemophilia Physiotherapy

Bleeding disorders are associated with specific musculoskeletal consequences. Physiotherapists are the core professionals skilled in assessing joint health and function
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Haemophilia Nursing

Haemophilia nurses support bleeding disorder patients and their carers within the hospital, the community and at home, encouraging active lives and full participation with peers
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Wellbeing

Living with an inherited bleeding disorder is tough. Patients and their carers can benefit immensely from the specialist skills provide by health psychologists and social workers
Coming soon

Projects-circle

Connect

with peers and share experience

Haemnet undertakes research studies and projects that will benefit the bleeding disorders community. We receive funding from a range of companies and charitable bodies. Current projects include the following:

Through Transforming Transition, Haemnet is bringing patients and nurses together to develop a nurse-led transition programme
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What’s it like to live with a platelet function disorder? Haemnet is trying to find out through the SO-LIFE study
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The Study Of physical Function In adolescents with haemophilia (SO-FIT) is the largest, multi-centre nurse-led assessment of patient-reported outcome measures yet conducted
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Haemnet is conducting a study in seven European countries aimed at evaluating the impact of bleeding on caregivers of children and young people with haemophilia
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Upcoming Events

Latest News

EAHAD defines principles of inhibitor management

May 10, 2018

Principles for the management of patients who develop inhibitors have been developed by a multidisciplinary group of health...

Perioperative replacement therapy in haemophilia B

May 10, 2018

Targeting Factor IX levels in patients with. Haemophilia B who are undergoing surgery is ‘complex and suboptimal’...

Cost of gene therapies might be millions per patient

May 10, 2018

The cost of gene therapy for patients with haemophilia could be as high as $2 million per person, according to US analysts...

Thanks to our partners

Haemophilia Nurses' Association

Haemnet is a nurse-led initiative endorsed by the Haemophilia Nurses Association and supported by Pfizer Ltd, Bayer, Baxter Healthcare Ltd, BPL, Biotest, Grifols, CSL Behring, Octapharma, SOBI, LFB and Novo Nordisk. Sponsors are not responsible for site content.

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