Inquiry terms of reference published

Inquiry terms of reference published...

The Terms of Reference have been published for the public inquiry to investigate historical cases of infection from blood and blood products. They can be downloaded from here.  The Inquiry will examine why men, women and children in the UK were given infected blood and/or infected blood products; the impact on their families; how the authorities (including government) responded; the nature of any support provided following infection; questions of consent; and whether there was a cover...

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Save One Life

offers sponsorships directly to individual children or adults with a bleeding disorder in developing countries

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news, views and information

Haemnet offers a range of educational opportunities for haemophilia care professionals. These include:

Contemporary Care of People with Bleeding Disorders is a three-day residential, expert-led training course for health care professionals
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Aspire is Haemnet’s bespoke leadership development programme for all members of the multidisciplinary team. ASPIRE is run by trained experts in leadership training
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Haemophilia Nurses' Association Competency Framework

The HNA Competency Framework provides a widely respected guide to the career development of haemophilia nurses
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The Journal of Haemophilia Practice is Haemnet’s open-access journal – a place where all members of the multidisciplinary team can share experience
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Build

skills and expertise

Managing haemophilia is about more than just administering factor treatment. Good all-round care provided by a multidisciplinary team is essential to prevent joint damage and to encourage those with haemophilia to live as near normal lives as possible.

Haemophilia Physiotherapy

Bleeding disorders are associated with specific musculoskeletal consequences. Physiotherapists are the core professionals skilled in assessing joint health and function
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Haemophilia Nursing

Haemophilia nurses support bleeding disorder patients and their carers within the hospital, the community and at home, encouraging active lives and full participation with peers
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Wellbeing

Living with an inherited bleeding disorder is tough. Patients and their carers can benefit immensely from the specialist skills provide by health psychologists and social workers
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Connect

with peers and share experience

Haemnet undertakes research studies and projects that will benefit the bleeding disorders community. We receive funding from a range of companies and charitable bodies. Current projects include the following:

Through Transforming Transition, Haemnet is bringing patients and nurses together to develop a nurse-led transition programme
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What’s it like to live with a platelet function disorder? Haemnet is trying to find out through the SO-LIFE study
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The Study Of physical Function In adolescents with haemophilia (SO-FIT) is the largest, multi-centre nurse-led assessment of patient-reported outcome measures yet conducted
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Haemnet is conducting a study in seven European countries aimed at evaluating the impact of bleeding on caregivers of children and young people with haemophilia
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Latest News

High potency Factor IX: inhibitors reported

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CB 2679d/ISU304, a high potency recombinant Factor IX that can be given subcutaneously, is undergoing Phase I/II trials that...

Catching up with reviews

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Italian investigators have drawn on literature reviews to describe the impact of developing inhibitors on people with haemophilia...

UCL fund supports gene technology research

Jul 2, 2018

The UCL Technology Fund, established to promote development of innovations arising from University College London’s research...

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Haemophilia Nurses' Association

Haemnet is a nurse-led initiative endorsed by the Haemophilia Nurses Association and supported by Pfizer Ltd, Bayer, Baxter Healthcare Ltd, BPL, Biotest, Grifols, CSL Behring, Octapharma, SOBI, LFB and Novo Nordisk. Sponsors are not responsible for site content.

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