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Gene therapy for haemophilia

New technologies for the treatment of haemophilia offer a future with better control of bleeding, fewer long term complications, a lower treatment burden and, in the case of gene therapy, the prospect of a life largely unaffected by the risk of spontaneous bleeds. They also bring challenges, with major change in the expectations of people …

Personal Resilience – video series

Everyone who works in healthcare knows that challenging events and behaviours are part and parcel of the everyday experience. We all have days when these can get too much. A few years ago at the HNA conference we asked people to give us examples of how they had bounced back from difficult or stressful situations …

HCPA Virtual Presentations | July 2020

On the 2nd July 2020, the HCPA ran a virtual CPD and networking evening via Zoom call for its members. Three presentations were given by David Stephensen, Melanie Bladen and Richard Davis. You can view the presentation recordings here: David Stephensen – The Haemophilia Joint Score vs Functional Measurement Melanie Bladen – Prevalence of Autism …

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London 2020: A Haemnet Consultation Exercise

The UK has an enviable reputation for high quality haemophilia services and pathways for patients. These services face both opportunities and challenges from: the growing range of haemophilia treatment options; the expectation of greater choice for patients and their engagement in the self-management of their condition; and the continuing goal of clinicians to improve clinical practice while the health …

Staying active: online support for haemophilia care professionals

That we are living in difficult times is an understatement. Many of us are adapting to the challenges associated with new ways of working, which adds to the stresses that we all face. It is important that we care for ourselves and those around us, physically as well as mentally. Being physically active means sitting down …

Support for haemophilia care professionals through the pandemic

The HNA was formed in the early 1980s to provide support for haemophilia nurses in difficult times. The COVID-19 pandemic means that once again we are living through challenging times. It has placed unprecedented demands on staff working in haemophilia care. Many professionals are now reviewing patients either by telephone or through web-based communications platforms. Some …

Useful physiotherapy tools

Here you can find a list of links and downloads to useful tools relevant to haemophilia and physiotherapy.

UK haemophilia physiotherapy: A future strategy built on past success

From its humble beginnings in 1990, the UK’s Haemophilia Chartered Physiotherapists Association (HCPA) has led the development of haemophilia physiotherapy in the UK and increasingly across Europe too.

HCPA Guidelines

UK Standards of Care

Haemophilia Chartered Physiotherapists Association (HCPA)

Personnel: Chair: Anna Wells Vice-Chair: David Hopper Research Lead: Dr David Stephensen Secretary: Elizabeth Bradshaw Treasurer: Joanne Minshall

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