Gene therapy for haemophilia
New technologies for the treatment of haemophilia offer a future with better control of bleeding, fewer long term complications, a lower treatment burden and, in the case of gene therapy, the prospect of a life largely unaffected by the risk of spontaneous bleeds. They also bring challenges, with major change in the expectations of people …
Personal Resilience – video series
Everyone who works in healthcare knows that challenging events and behaviours are part and parcel of the everyday experience. We all have days when these can get too much. A few years ago at the HNA conference we asked people to give us examples of how they had bounced back from difficult or stressful situations …
HCPA Virtual Presentations | July 2020
On the 2nd July 2020, the HCPA ran a virtual CPD and networking evening via Zoom call for its members. Three presentations were given by David Stephensen, Melanie Bladen and Richard Davis. You can view the presentation recordings here: David Stephensen – The Haemophilia Joint Score vs Functional Measurement Melanie Bladen – Prevalence of Autism …
Join for AccessLondon 2020: A Haemnet Consultation Exercise
The UK has an enviable reputation for high quality haemophilia services and pathways for patients. These services face both opportunities and challenges from: the growing range of haemophilia treatment options; the expectation of greater choice for patients and their engagement in the self-management of their condition; and the continuing goal of clinicians to improve clinical practice while the health …
Staying active: online support for haemophilia care professionals
That we are living in difficult times is an understatement. Many of us are adapting to the challenges associated with new ways of working, which adds to the stresses that we all face. It is important that we care for ourselves and those around us, physically as well as mentally. Being physically active means sitting down …
Support for haemophilia care professionals through the pandemic
The HNA was formed in the early 1980s to provide support for haemophilia nurses in difficult times. The COVID-19 pandemic means that once again we are living through challenging times. It has placed unprecedented demands on staff working in haemophilia care. Many professionals are now reviewing patients either by telephone or through web-based communications platforms. Some …
Useful physiotherapy tools
Here you can find a list of links and downloads to useful tools relevant to haemophilia and physiotherapy.