This short animation in our HaemHacks series focuses on living with a platelet disorder. It provides some simple information about platelet disorders, the symptoms patients can expect, and the importance of communicating with the care team to ensure they receive the right treatment! Be sure to check out the other animations in our HaemHacks series by following us on Facebook and subscribing to the Haemnet YouTube channel.
About one-fifth of adults, young people and children have problems with adherence to factor replacement therapy, according to a systematic review of 16 studies from Canada (Patient Prefer Adherence 2018 Oct 8; doi: 10.2147/PPA.S177624). The analysis, using a framework adapted from research in people with diabetes, found that some studies had focused attention on factors …Read article
The haemophilia community is now past the stage where opinion leaders say exercise is a good thing, with increased activity and sports participation widely promoted for everyone – as appropriate individually, of course. A recent review from Sweden provides a marker of progress in research and clinical thinking to date (Semin Thromb Hemost 2018 Oct …Read article
A multinational trial involving eleven centres, including NHS services in Oxford and London, has shown that recombinant von Willebrand factor (rVWF) is safe and effective as prophylaxis during elective surgery in people with severe von Willebrand’s disease. Fifteen patients undergoing major, minor or oral surgery received rVWF 40-60 IU/kg one hour before surgery and postoperatively …Read article