The Haemnet approach is all about sharing experience to expand knowledge

We deliver in-depth mixed methods research into the lived experience of people affected by bleeding disorders and creatively communicate our findings.

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Latest from Haemnet

Life with Glanzmann thrombasthenia – Results from our GT360 study
 When it comes to rare bleeding disorders, the clue is in… Read more

Connections, community and von Willebrand disease
Recently, members of the Haemnet team took part in a collaborative event… Read more

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The Journal of Haemophilia Practice - Open to All

The Journal of Haemophilia Practice is a peer-reviewed open access journal for all members of the multidisciplinary bleeding disorders care team.

From case studies and clinical practice to original research and reviews, the journal publishes all types of papers relevant to the care of people with bleeding disorders.

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What we do

Research

We conduct patient focused mixed methods research, combining both quantitative and qualitative methods, uncovering crucial insight into the lived experience of those with rare conditions.

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Publishing and Media

Research reports, scientific publications, articles, videos and animations…these are just a few examples of the content Haemnet produces.

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The Journal of Haemophilia Practice

The Journal of Haemophilia Practice (JHP) is an international, open-access, peer-reviewed journal that accepts papers from all members of the multidisciplinary bleeding disorders care team.

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If you want to be kept up to date with our latest events and news, as well as be notified about upcoming research projects you can get involved in then provide a couple of details below and subscribe to our mailing list.

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Landmarks of haemophilia care

"The more you know about the past, the better you are prepared for the future” - Theodore Roosevelt

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