"The Haemnet approach is all about sharing experience to expand knowledge."

"The Haemnet approach is all about sharing experience to expand knowledge."

Haemnet works with patient communities, healthcare professionals, industry and other key stakeholders.

We deliver in-depth mixed methods research into the lived experience of people affected by bleeding disorders and creatively communicate our findings to the wider community.

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Latest from Haemnet

A good year for The Journal of Haemophilia Practice
There is always a sense of anticipation among Haemnet’s publications team when… Read more

Reflecting on the role of the haemophilia nurse
For International Nurses Day 2023, I’m delighted that The Journal of Haemophilia Practice… Read more

Latest from the blog

Looking back on 2022, we’re looking forward to 2023

2022 was a transitional year for Haemnet, and it was both full and fulfilling. We’ve asked important questions, explored and analysed. We’ve created, published and podcasted. And we’ve shared our research findings, expertise and experience internationally, in print, online and in person.

What does this mean in practice? Well, we’ve added it all up (quite literally) to give a ‘Haemnet in numbers’ summary showing what we achieved last year

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What we do


We conduct patient focused mixed methods research, combining both quantitative and qualitative methods, uncovering crucial insight into the lived experience of those with rare conditions.

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Publishing and Media

Research reports, scientific publications, articles, videos and animations…these are just a few examples of the content Haemnet produces.

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Community Engagement

Haemnet creates and facilitates opportunities for all stakeholders to contribute their insights. From patients and carers, to HCPs and industry, everyone has a voice that needs to be heard.

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The Journal of Haemophilia Practice

The Journal of Haemophilia Practice (JHP) is an international, open-access, peer-reviewed journal that accepts papers from all members of the multidisciplinary bleeding disorders care team.

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Stay in touch

If you want to be kept up to date with our latest events and news, as well as be notified about upcoming research projects you can get involved in then provide a couple of details below and subscribe to our mailing list.

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The Haemnet Community

The Haemnet Community is an online forum designed specifically for nurses, physios and other healthcare professionals working within bleeding disorders. It offers a private platform for HCPs to share knowledge and seek advice in a safe and secure environment

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Landmarks of haemophilia care

"The more you know about the past, the better you are prepared for the future” - Theodore Roosevelt

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What we're about