"The Haemnet approach is all about sharing experience to expand knowledge."
"The Haemnet approach is all about sharing experience to expand knowledge."
Haemnet works with patient communities, healthcare professionals, industry and other key stakeholders.
We deliver in-depth mixed methods research into the lived experience of people affected by bleeding disorders and creatively communicate our findings to the wider community.
Tell me moreLatest from Haemnet
A reconstitutional question
Factor replacement therapies have been revolutionary for people with haemophilia. The ability… Read more
What's in a label?
I have asthma – I am not an asthmatic! I am Kate,… Read more
Looking back on 2022, we’re looking forward to 2023
2022 was a transitional year for Haemnet, and it was both full and fulfilling. We’ve asked important questions, explored and analysed. We’ve created, published and podcasted. And we’ve shared our research findings, expertise and experience internationally, in print, online and in person.
What does this mean in practice? Well, we’ve added it all up (quite literally) to give a ‘Haemnet in numbers’ summary showing what we achieved last year
Full blog Work with usOur Services
Research
We conduct patient focused mixed methods research, combining both quantitative and qualitative methods, uncovering crucial insight into the lived experience of those with rare conditions.
Tell me morePublishing
The Journal of Haemophilia Practice (JHP) is an international, open-access, peer-reviewed journal that accepts papers from all members of the multidisciplinary bleeding disorders care team.
Tell me moreCommunity Engagement
Haemnet creates and facilitates opportunities for all stakeholders to contribute their insights. From patients and carers, to HCPs and industry, everyone has a voice that needs to be heard.
Tell me moreDigital Media
Research reports, scientific publications, articles, videos and animations…these are just a few examples of the content Haemnet produces.
Tell me moreStay in touch
If you want to be kept up to date with our latest events and news, as well as be notified about upcoming research projects you can get involved in then provide a couple of details below and subscribe to our mailing list.
Sign upThe Haemnet Community
The Haemnet Community is an online forum designed specifically for nurses, physios and other healthcare professionals working within bleeding disorders. It offers a private platform for HCPs to share knowledge and seek advice in a safe and secure environment
Join the communityLandmarks of haemophilia care
"The more you know about the past, the better you are prepared for the future” - Theodore Roosevelt
Show me moreWhat we're about
Partners
