"The Haemnet approach is all about sharing experience to expand knowledge."

"The Haemnet approach is all about sharing experience to expand knowledge."


Haemnet works with patient communities, healthcare professionals, industry and other key stakeholders.

We deliver in-depth mixed methods research into the lived experience of people affected by bleeding disorders and creatively communicate our findings to the wider community.

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Latest from Haemnet

Gene therapy for haemophilia B in the UK? Hold your horses!
After years on the track, gene therapy for haemophilia seems to have… Read more

Animating self-advocacy for the bleeding disorders community
If you live with a bleeding disorder, self-advocacy isn’t just important –… Read more

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What we do

Research

We conduct patient focused mixed methods research, combining both quantitative and qualitative methods, uncovering crucial insight into the lived experience of those with rare conditions.

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Publishing and Media

Research reports, scientific publications, articles, videos and animations…these are just a few examples of the content Haemnet produces.

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The Journal of Haemophilia Practice

The Journal of Haemophilia Practice (JHP) is an international, open-access, peer-reviewed journal that accepts papers from all members of the multidisciplinary bleeding disorders care team.

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Stay in touch

If you want to be kept up to date with our latest events and news, as well as be notified about upcoming research projects you can get involved in then provide a couple of details below and subscribe to our mailing list.

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Landmarks of haemophilia care

"The more you know about the past, the better you are prepared for the future” - Theodore Roosevelt

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