Since becoming a state registered nurse, Kate Khair has gained a number of other professional qualifications, including state registration in pediatric nursing, a master’s degree in anthropology, a City and Guilds Master’s degree in higher levels of practice, several modules in advanced nursing and a PhD in health and social care. Kate is an advocate of the nurse’s role in the multi-disciplinary care team. She is the chair of the UK Haemophilia Nurses Association and chair of the World Federation of Hemophilia Nurses Committee. Kate has worked in the hemophilia treatment centre at Great Ormond Street Hospital for Children since 1991. The nurse consultant role has allowed her to have academic time which continues to be used to better understand living with bleeding disorders from a child and family perspective. It has also allowed her to look at the evaluation of health care outcomes. Kate is also the editor-in-chief of The Journal of Haemophilia Practice which was developed to encourage allied health professionals so share best practice through case studies and qualitative research.
Cathy is an Advanced Nurse Practitioner at Sheffield Teaching Hospitals, she has worked within the Adult Haemophilia & Thrombosis Centre since 2006, initially as a Sister and then progressing through Nurse Specialist and to her current post. Cathy qualified as an adult nurse in 2002 with an Advanced Diploma, she went on to complete her BMedSci in Acute & Critical Care whilst working in the Haematology & the Haemophilia, and is currently in the process of completing her MSc in Advanced Practice. Her dissertation is focusing on the management of people with bleeding disorders and atrial fibrillation. Cathy has co-created & taught on the Contemporary Care Course for People with Bleeding Disorders. She is on the UKHCDO Peer review working party.
Paul McLaughlin works as a Clinical Specialist Physiotherapist in Haemophilia at the Katharine Dormandy Haemophilia Centre at Royal Free Hospital in London. In 2000 he completed his undergraduate degree at the University of Ulster in Belfast, N Ireland, and his Master’s degree in Advanced Physiotherapy (Neuromusculoskeletal Rehabilitation) at King’s College London in 2009. He is a member of the Musculoskeletal Association of Chartered Physiotherapists (MACP), a specialist group of therapists utilizing expertise in musculoskeletal assessment and treatments. His clinical interests are management of chronic musculoskeletal pain in Haemophilia and the use of exercise as a rehabilitation tool, manual therapy and patient reported outcomes assessment. He is a past chairman of the HCPA – a UK group of specialist physiotherapists working in Haemophilia. He is a member of the EAHAD physiotherapy committee, and the musculoskeletal working party of the UKHCDO. He also represents Haemophilia physiotherapy at National level on the NHS England Clinical Reference Group.
Debra Pollard is Lead Nurse at the Katharine Dormandy Haemophilia Centre, Royal Free Hospital, London, UK where she has worked since 1991. Her main academic interests lie in qualitative research, particularly relating to the lived experiences and quality of life of people with bleeding disorders. She completed her MSc in Advanced Practice in 2014 with a research project exploring how men with haemophilia describe their quality of life. She has a particular interest in supporting the needs of women with bleeding disorders, and co-ordinates the service for women which combines the expertise of the haemostasis team with the Ob/Gyn team to provide holistic care in a single setting. Debra served as a Trustee of the UK Haemophilia Society from 2005-2012 and continues as part of their Clinical Advisory Board.
Liz Rizzuto works for the Stroke Association in an Estates and Facilities role on business continuity and service delivery. Her past experience has been in HR and business administration in local policing and London in counter terrorism following the bombings in 2005.
She is a former trustee of the Haemophilia Society and held the post of chair for 4 years, the first female chair in its current history. During this time she was instrumental in promoting the bid to hold WFH in Glasgow 2018. Liz was also co-chair for the now defunct Haemophilia Alliance, a United Kingdom wide partnership between patients with inherited bleeding disorders and health care professionals involved in the delivery of haemophilia care.
Liz has been active in local haemophilia groups for over 27 years and from a personal perspective, understands the lifelong relationship between healthcare professionals and people with a bleeding disorder and of the importance of excellent care and treatment.
Mike Holland graduated in physiology and biochemistry before starting a career in medical publishing, working on a range of academic and news based publications. In 1997 he became a freelance medical and health care writer/editor, working with professional organisations, pharmaceutical and public relations companies, medical education agencies and charities, preparing materials for healthcare professionals, patients and the media. He has written several books, many monographs and is the originating author of more than 45 articles published in peer reviewed journals.
He began working in haemophilia in 2009 and the following year established haemnet.com, a professional network for nurses and health care professionals who treat people with haemophilia and inherited bleeding disorders.
Through Haemnet, he runs the annual conference of the Haemophilia Nurses Association, as well as a growing range of haemophilia-specific and professional development training courses. He is also the Managing Editor of The Journal of Haemophilia Practice (www.haemjournal.com), the open-access, online journal for haemophilia care professionals launched by Haemnet in 2014.
Sandra Dodgson is a strategic development specialist with a track record of working with groups to achieve shared purposes that make a real difference for the people who use and deliver services. Most recently, she was the strategic development director at Bridge Mental Health, a charity that supports people to achieve greater independence and mental wellbeing. As a member of the executive team, she contributed significantly to its growth and led on development of the service user led recovery college based in the local community.
She has also worked in the Department of Health supporting ‘policy into practice’, the third sector in drug and alcohol services, and has successfully run her own consultancy business, advising charities, central government departments, local councils and national professional bodies. Sandra also works in her own local community facilitating local voices to be heard by the local council and other statutory / governing bodies. She is also a published author of various articles on ‘values’ and ‘governance’ within and across organisations.
Luke Pembroke is a project manager and “patient researcher” with Haemnet. Luke has experience working within the medical education sector of the healthcare communications industry. Living with haemophilia himself, Luke is an active patient advocate, and has worked extensively with a network of patient groups within the UK, Europe and globally. Whether working on more education materials HCPs and patients, to more creative blogs and social media posts, Luke is often found writing in some manner. He also has a keen interest in videography and film, making the most of any opportunity to grab his camera, getting out and capturing a story.