Patient-centered care needs patient-focused research

Healthcare professionals frequently talk about patient-centred care, and probably most believe it is what they provide. But how many actually play an active role in the research that informs those decisions? Mention the word research in the healthcare setting and most people will immediately think of drug trials. While its clearly important to study new …

Breaking down the research barriers

Most of us would agree that clinical research is a good thing – we need it so that healthcare providers can keep improving the treatments we offer to patients. In most conditions this involves doing large scale trials to generate evidence. Nationally, more patients are getting involved year on year: last year over 595,000 patients …

This One’s For the Girls

How many girls and young women do you see with bleeding disorders? And how well do they cope with their condition? Last year, we explored the everyday lives of girls and young women with bleeding disorders by means of a couple of focus groups. We found that young women with IBD who are managed at …