Blog

January 8, 2018
A practical guide to switching factor concentrates post tender

In the UK, since 2004, there has been a national tender system for the purchasing of clotting factor concentrates managed by the Commercial Medicines Unit, a part of NHS England. This has led to significantly lower prices. The outcome of a new contract means that haemophilia centres have to commit to using certain volumes of …

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December 21, 2017
Trish lights up Princess’s Christmas tree

Decorating the tree is often a problem when you live in a massive old town house in the centre of London. This year, the lucky residents of Clarence House were able to call upon expert help from specialist nurses and the families they help. HRH The Duchess of Cornwall is patron of the Roald Dahl’s …

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November 25, 2017
Is it time to think beyond bleed rates?

It is reasonable to assume that all stakeholders in haemophilia care want the best health outcomes from every health care pound. Trouble is, each stakeholder has a unique perspective and different expectations. Speaking at a recent Bayer Healthcare Hematology Conference, Mark Skinner, President and CEO of the Institute for Policy Advancement and former WFH chair, …

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September 16, 2017
Haemophilia care at Mulago Hospital, Kampala, Uganda

Day 4 An early start today, giving ourselves plenty of time to navigate the Kampala morning rush hour. If you think London is bad, then you need to experience this! Our trusty driver, Vincent, snaked through the traffic with ease as we watched an impressive sunrise through a haze of exhaust fumes and orchestra of …

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September 13, 2017
Haemophilia in Uganda | Meeting the bleeding disorder community

This week I have been in Uganda, documenting the situation of haemophilia in the country. I have been meeting with various members of the community through connections made by Kate Khair over the last four years. Kate is a nurse consultant at Great Ormond Street Hospital (GOSH) in London, and has been the lead for …

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August 4, 2017
Psychologists bring specialist knowledge to enhance haemophilia practice

Many patients living with chronic conditions such as bleeding disorders will experience mental health issues at some stage in their life. Psychologists are increasingly seen as crucial members of the haemophilia MDT, offering specialist knowledge to help patients deal with issues that affect them in living with their haemophilia. Haemnet recently supported a meeting of …

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July 11, 2017
Benefits and beyond: exploring the diverse roles of social workers

Social workers sited in the haemophilia and bleeding disorder community from across the UK, recently got together for the day to explore their roles and share their experience. This day was hosted and facilitated by Haemnet as part of its support for the psychosocial members of the haemophilia team. Traditionally within haemophilia, the role of …

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June 7, 2017
Let Haemnet help you “Find Your Voice”

Public speaking can be daunting but it is a rewarding experience that is increasingly important for haemophilia nurses seeking to establish their professional role. At this year’s HNA meeting, a workshop organised by Anne Wareing and Pamela Wick and supported by CSL Behring, sought to provide nurses with the groundwork needed to help them communicate …

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May 8, 2017
No “clear and consistent evidence” of difference in inhibitor risk

There is no clear and consistent evidence of a difference in the incidence of inhibitor development between factor VIII products derived from plasma and those made by recombinant DNA technology. The Pharmacovigilance Risk Assessment Committee (PRAC) of the European Medicines Agency has now completed its review of factor VIII medicines to evaluate the risk of …

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March 29, 2017
Providing haemophilia care from Truro to Lands End and beyond

With so much focus on the haemophilia care provided by comprehensive care centres (CCCs) it’s sometimes easy to forget that for many people a visit to the haemophilia centre is a distinctly local affair. Few parts of the UK exemplify this better than Cornwall, a large and geographically isolated peninsular where the resident population of …

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