Recents
Rarer than rare: Glanzmann thrombasthenia in Nigeria
On Rare Disease Day 2025, we share the story of an inspirational young woman from Nigeria with Glanzmann thrombasthenia
Blue Monday, I wish it were Sunday – working with a bleeding disorder
Haemnet's CEO reviews a recent pilot study on how having a bleeding disorder impacts working life
Women and Glanzmann thrombasthenia: GT360
Through affected in roughly equal numbers, our study findings suggest Glanzmann thrombasthenia impacts women more than men
Life with Glanzmann thrombasthenia – Results from our GT360 study
Our GT360 study is the largest study to date exploring the lived experience of Glanzmann thrombasthenia
Eduard and Erik need apostrophes – or Pedants “R” Us
On International Apostrophe Day, Haemnet’s CEO, Mike Holland, muses on the naming of bleeding disorders When it comes to writing,…
In addressing equity, we need to acknowledge the rares within the rare
For Rare Disease Day 2024 the theme is “equity.” This is certainly a topic that resonates within the bleeding disorders…
Reflections from the Glanzmann’s Research Foundation Inaugural Patient Conference
Last week, Kate and I hopped over the pond to attend the Glanzmann’s Research Foundation’s (GRF) first ever educational conference…
All go for Haemnet at ISTH 2023
The International Society for Thrombosis and Haemostasis (ISTH) is an organisation of clinicians and scientists sharing new discoveries, enhanced understanding…
Using mixed methods to uncover Glanzmann’s Thrombasthenia
Rare Disease Day is celebrated globally on 28 February each year, drawing focus to over 300 million people worldwide who…