Recents
As they say – ‘there’s no i in team’
There was a time when use of the term “multidisciplinary” in the context of haemophilia congresses meant the inclusion of…
A practical guide to switching factor concentrates post tender
In the UK, since 2004, there has been a national tender system for the purchasing of clotting factor concentrates managed…
Trish lights up Princess’s Christmas tree
Decorating the tree is often a problem when you live in a massive old town house in the centre of…
Haemophilia care at Mulago Hospital, Kampala, Uganda
Day 4 An early start today, giving ourselves plenty of time to navigate the Kampala morning rush hour. If you…
Haemophilia in Uganda | Meeting the bleeding disorder community
This week I have been in Uganda, documenting the situation of haemophilia in the country. I have been meeting with…
Benefits and beyond: exploring the diverse roles of social workers
Social workers sited in the haemophilia and bleeding disorder community from across the UK, recently got together for the day…
Let Haemnet help you “Find Your Voice”
Public speaking can be daunting but it is a rewarding experience that is increasingly important for haemophilia nurses seeking to…
No “clear and consistent evidence” of difference in inhibitor risk
There is no clear and consistent evidence of a difference in the incidence of inhibitor development between factor VIII products…
Providing haemophilia care from Truro to Lands End and beyond
With so much focus on the haemophilia care provided by comprehensive care centres (CCCs) it’s sometimes easy to forget that…
Escape to the Magic Garden
My earliest memories of bleeds are not necessarily of the bleeds themselves but of the imaginary, mystical garden full of…
Bowled Over by Basingstoke
There is more to haemophilia treatment centres than meets the eye. While I value the importance of a great multidisciplinary…
In the bleak midwinter – think Africa!
Think Africa; hot sunny weather, palm fringed beaches, weird wild animals … and haemophilia. I have, as many of you…