Case studies
Exercising safely with Project GYM
When a person with haemophilia told the Haemnet team they couldn’t go to the gym because of their condition, we saw the importance of showing that physical activity is beneficial in haemophilia.
A natural history of Glanzmann’s
Haemnet was commissioned to undertake a mixed methods natural history study to gain a greater understanding of how Glanzmann Thrombasthenia impacts those who live with it and their families.
Unmet need in women who bleed
From research to access to treatment, women with bleeding disorders have been overlooked and underserved. Haemnet’s Cinderella study looked to provide insights and raise awareness unmet needs of women who bleed.
Exploring haemophilia gene therapy
As initial studies of haemophilia gene therapy began to show promise, we set out to learn what members of the haemophilia community really thought about it with an ethically approved, mixed methods study.
Perceptions of Pain in Haemophilia
Little research has emerged that truly gets to grips with the everyday impact of pain on people with haemophilia. Our cross-sectional, survey-based study sought to change that.