Recents
Blue Monday, I wish it were Sunday – working with a bleeding disorder
Haemnet's CEO reviews a recent pilot study on how having a bleeding disorder impacts working life
Women and Glanzmann thrombasthenia: GT360
Through affected in roughly equal numbers, our study findings suggest Glanzmann thrombasthenia impacts women more than men
Life with Glanzmann thrombasthenia – Results from our GT360 study
Our GT360 study is the largest study to date exploring the lived experience of Glanzmann thrombasthenia
What do we really know about von Willebrand disease?
Von Willebrand disease is by far the most common bleeding disorder, but it's also one of the least well understood
Unmet needs – going down the rabbit hole
Who says people with bleeding disorders have unmet need? And how do we decide what it is?
Why we need to shout louder about von Willebrand disease
We look at why sharing experience is important for von Willebrand disease research
Sporting inspiration – exercising with a bleeding disorder
Our Project GYM resources provide hints and tips on exercise for people with bleeding disorders and personal trainers …
In addressing equity, we need to acknowledge the rares within the rare
For Rare Disease Day 2024 the theme is “equity.” This is certainly a topic that resonates within the bleeding disorders…
Listen and learn like a legend
Vincent van Gogh cut one off in a rage, but Dr Kate Khair’s grandfather’s knew that Voltaire was on to…
Exploring the experience of pain in haemophilia
Pain in haemophilia has become something of a hot topic – these days, any respectable haemophilia conference will include a…
Why mixed methods matter in bleeding disorders research
From clinical trials to observational studies, people with bleeding disorders are often included in research. There’s no denying that this…