Recents
Caring for boys with severe haemophilia A: a family journey
Parents Lauren and Ben discuss early struggles with haemophilia treatment, and overcoming fear, stress and anxiety
Blue Monday, I wish it were Sunday – working with a bleeding disorder
Haemnet's CEO reviews a recent pilot study on how having a bleeding disorder impacts working life
Living a new normal: a mum’s experience of Type 3 von Willebrand disease
Anna discusses her experience of adapting to a different way of life following an unexpected diagnosis
Women and Glanzmann thrombasthenia: GT360
Through affected in roughly equal numbers, our study findings suggest Glanzmann thrombasthenia impacts women more than men
Life with Glanzmann thrombasthenia – Results from our GT360 study
Our GT360 study is the largest study to date exploring the lived experience of Glanzmann thrombasthenia
Connections, community and von Willebrand disease
Recently, members of the Haemnet team took part in a collaborative event for the von Willebrand's community
What do we really know about von Willebrand disease?
Von Willebrand disease is by far the most common bleeding disorder, but it's also one of the least well understood
Unmet needs – going down the rabbit hole
Who says people with bleeding disorders have unmet need? And how do we decide what it is?
Peer reviewers, we salute you! – Peer Review Week 2024
In the world of journal publishing, peer review is used to decide whether a paper is suitable for publication
Why we need to shout louder about von Willebrand disease
We look at why sharing experience is important for von Willebrand disease research
Family trees and factor – haemophilia education in Nigeria
Haemnet’s Director of Research, Kate Khair, recently travelled to deliver haemophilia education in Nigeria to support improved rates of diagnosis.…
Eduard and Erik need apostrophes – or Pedants “R” Us
On International Apostrophe Day, Haemnet’s CEO, Mike Holland, muses on the naming of bleeding disorders When it comes to writing,…