Recents
Connections, community and von Willebrand disease
Recently, members of the Haemnet team took part in a collaborative event for the von Willebrand's community
What do we really know about von Willebrand disease?
Von Willebrand disease is by far the most common bleeding disorder, but it's also one of the least well understood
Unmet needs – going down the rabbit hole
Who says people with bleeding disorders have unmet need? And how do we decide what it is?
Peer reviewers, we salute you! – Peer Review Week 2024
In the world of journal publishing, peer review is used to decide whether a paper is suitable for publication
Why we need to shout louder about von Willebrand disease
We look at why sharing experience is important for von Willebrand disease research
Family trees and factor – haemophilia education in Nigeria
Haemnet’s Director of Research, Kate Khair, recently travelled to deliver haemophilia education in Nigeria to support improved rates of diagnosis.…
Eduard and Erik need apostrophes – or Pedants “R” Us
On International Apostrophe Day, Haemnet’s CEO, Mike Holland, muses on the naming of bleeding disorders When it comes to writing,…
Sporting inspiration – exercising with a bleeding disorder
Our Project GYM resources provide hints and tips on exercise for people with bleeding disorders and personal trainers …
On von Willebrand disease, community, and being the voice of the voiceless
Sunny Maini talks about using his experience of von Willebrand disease and a successful corporate background to nurture an empowered…
Reflections on the Infected Blood Inquiry report: the beginning of justice
Three weeks on from the publication of Sir Brian Langstaff’s report on the Infected Blood Inquiry, Sally-Anne Wherry reflects on…
Accessing haemophilia care in Uganda
The theme for World Hemophilia Day 2024 is ‘Equitable Access for All: Recognizing All Bleeding Disorders’. If you have haemophilia…
From haemophilia hero to ecology zero: Luke’s new chapter
Back in the 2011, I received an invitation to participate in a focus group for young people with haemophilia. The…