Recents
Reflections from the Glanzmann’s Research Foundation Inaugural Patient Conference
Last week, Kate and I hopped over the pond to attend the Glanzmann’s Research Foundation’s (GRF) first ever educational conference…
Hub and spoke – not just about bicycles
Last year, the first gene therapy to treat severe haemophilia A was granted ‘conditional marketing authorisation’ in Europe (basically, fast-track…
All go for Haemnet at ISTH 2023
The International Society for Thrombosis and Haemostasis (ISTH) is an organisation of clinicians and scientists sharing new discoveries, enhanced understanding…
A natural history of haemophilia treatments
In a recent paper in The Journal of Haemophilia Practice, Tyler Buckner and colleagues describe the development of ‘ATHN 7’.…
A good year for The Journal of Haemophilia Practice
There is always a sense of anticipation among Haemnet’s publications team when we receive the annual report for The Journal…
Reflecting on the role of the haemophilia nurse
For International Nurses Day 2023, I’m delighted that The Journal of Haemophilia Practice is publishing the first papers in our Living,…
Mild disorders matter
People whose bleeding disorders are categorised as ‘mild’ (often defined as having between 5% to 40% of usual clotting levels)…
A bleed is a bleed – whatever your diagnosis
The theme of World Hemophilia Day this year is “Access for All: Prevention of bleeds as the global standard of care”.…
Capturing quality of life after gene therapy
The treatment options available to people with haemophilia have expanded rapidly in recent years. With gene therapies for both…
Visualising haemophilia gene therapy
With the recent licensing of haemophilia gene therapy, it’s no surprise that it was a hot topic at the EAHAD…
Let’s hear it for the girls
On International Women’s Day 2023, Haemnet shines a light on women and girls with bleeding disorders Looking back on…
Yes, haemophilia affects women too
For far too long, haemophilia has been associated with men. Women have been relegated to being labelled as ‘carriers’ and…