Recents
Speaking out for ultra-rare bleeding disorders
For Rare Disease Day 2026, we’re shining a spotlight on ultra-rare bleeding disorders. Rare Disease Day, marked on the last…
When haemophilia becomes human failure: Adventures in AI transcription
Artificial intelligence, or AI, touches our lives in many ways. Its ability to work accurately and at a rapid pace…
Leverage for life-changing therapies: WHO Essential Medicines and haemophilia care in Uganda
In September 2025, the World Federation of Hemophilia (WFH) announced that the World Health Organization (WHO) Essential Medicines List (EML)…
First step to care: Haemophilia diagnosis in Uganda
Earlier this month, the World Federation of Hemophilia (WFH) announced the theme for next year’s World Hemophilia Day: “Diagnosis: First…
Sticker charts, school trips and severe haemophilia A — Debbie’s story (part 2)
Learning to treat her son Jamie* (*a pseudonym) prophylactically after his diagnosis with severe haemophilia A was a major step…
ITP Awareness: Shining a light on immune thrombocytopenia
Did you know that this week (22-28 September 2025) is the tenth Global ITP Awareness Week? Every September, ITP patient…
A diagnosis of severe haemophilia means my son gets treatment — Debbie’s story (Part 1)
In the first of a two-part blog, Debbie shares her experience of her son, Jamie, having an unexpected diagnosis of…
Virtual haemophilia care — What do the experts say?
Community advocate Rich Gorman comments on a recent paper discussing virtual care for haemophilia, published in The Journal of Haemophilia…
Raising girls with Type 2A von Willebrand disease (part 2)
In the second part of their blog about family life, Alex and Jo talk about how they approach raising girls…
Raising girls with Type 2A von Willebrand disease (part 1)
In the first part of a two-part blog about their family, Alex and Jo discuss how they feel about having…
A long life with haemophilia: Terence’s tale and the power of storytelling
When Terence O’Rourke sat down with Dr Meila Roy of the Southern Haemophilia Network to talk about living a long…
International Nurses’ Day – We need more nurse research
On International Nurses Day 2025, Dr Kate Khair discusses the important contribution that bleeding disorders nurses make to research.