| Curriculum Area
|
Educational Opportunities |
Countries |
| 1. Applied Biological Science |
Self directed learning e.g. Access to medical database provided by institutions (Estonia); Clinical trials documents (Spain); Web seminars (Netherlands); websites and journals: Haemophilia and The Journal of Haemophilia Practice |
Estonia, Denmark, UK, Serbia, Belgium, Finland, Spain, Netherlands
|
| Courses
|
Basic nurse education |
UK, Denmark, Croatia, Serbia, Belgium |
| Haemophilia specific |
Ireland, UK, Netherlands (Haematology) |
| MSc Advanced Nursing Practice |
UK, Belgium, Netherlands |
| National Guidelines |
Ireland, Netherlands, Estonia (Baltic haemophilia guidelines for doctors) |
| Peer learning e.g. Nurse initiatives in country |
Germany, Estonia, Finland (every 2 years), Belgium, UK |
| Events |
Conferences, congresses, symposia, e.g. EAHAD, WFH |
Denmark, Belgium, Serbia, Croatia, Finland, UK, Ireland, Spain, Netherlands |
| Pharma company meetings and congresses |
Ireland, UK, Germany, Serbia, Denmark, Croatia, Finland |
| 2. Treatment and management of haemophilia and associated disorders
|
Self directed learning e.g. Reading and discussing with colleagues cross Europe
|
Denmark, UK, Serbia, Belgium, Finland
|
| Courses e.g. Previous nurse training in venous access (Denmark); Continuous skills retraining and upskilling (Ireland) |
Denmark, Ireland |
| On the job learning e.g. Observation of practice; Observation in the lab and asking about PK tests and Inhibitor tests (Spain); For criteria 2.5 – nurse specialists only (Netherlands); Observing patients re: venous access (Croatia) |
Belgium, Denmark, Croatia, UK, Netherlands, Spain
|
| Guidelines e.g. For venous access and port-a-caths used in teaching families and patients (5 centre collaboration) |
Finland |
| Peer learning with MDT colleagues and peers, e.g. Haemovigilance officer helps with stock management and good communications with delivery company (Ireland); For criteria 2.7 – wider specialist team including renal and psychology (Belgium, Denmark, Croatia); Medical colleagues (Denmark, Croatia, UK, Belgium) |
Denmark, Belgium, Serbia, Croatia |
| Events e.g. Workshops and conferences |
Netherlands |
| Other |
Pharma education e.g new products |
Ireland, Denmark, UK, Serbia, Belgium, Croatia |
| Clinical trials |
Croatia, Denmark, Serbia, Belgium |
| 3. Genetic Practice |
Self directed learning |
Denmark, Belgium, Finland |
| Courses e.g. Counselling Courses; MSc Genetics (a module only would be good) |
UK |
| On the job training |
Denmark, Croatia Belgium, Finland |
| Practice e.g. Genetic counselling colleagues (UK); Appointment with Genetics Department (Germany); Genetic counselling available and support by patients’ society (Estonia); Genetic counselling by haemophilia Clinical Nurse Specialist (CNS) |
UK, Germany, Estonia, Ireland |
| Events e.g. Congresses |
Denmark, Belgium, Finland |
| 4. Care management of carriers and women affected by inherited bleeding disorders
|
Self directed learning, e.g. WFH publications on carriers and research articles |
Croatia, Denmark, UK, Ireland |
| On the job training e.g. Learning from patients at Patient Association events for carriers (Spain) |
Netherlands, Spain |
| Guidelines – National and local |
UK |
| Practice e.g. Combined clinics with haematologists and gynaecologists – before and during pregnancy (Netherlands); Collaboration with obstetricians and midwives (UK); Meet pregnant mums pre and post delivery (Ireland); Centralised service at CCC in Helsinki provides for all (Finland) |
Netherlands, UK, Ireland |
| Events e.g. Workshops and local training |
Ireland, Denmark |
| 5. The impact of living with bleeding disorders |
Self directed learning e.g Living with Heamophilia, Peter Jones (book), Research |
UK, Denmark |
| Courses e.g. Coaching skills education |
Denmark |
| On the job learning e.g. Learning from patients including patients’ association |
Spain, Denmark |
| Guidelines e.g. WFH |
Estonia |
| Practice – e.g. MDT approaches and transition clinics with adult and paediatric teams – doctor, nurse, psychologist, physiotherapist (UK); Access to psychologist (UK); Using Quality of Life assessment tools (Estonia, UK); Connecting families through events at the centre e.g. Christmas party and picnics (UK) |
UK, Estonia |
| 6. Evidence base and applied research in haemophilia practice |
Self directed learning e.g. Clinical trials information, materials and webinars (Spain); GAPS with data collection (Estonia) |
Most countries |
| Courses e.g. MSc level Education (?); GCP training – face to face and e-learning (?); Haematology Course which can focus on Non Malignancy 1 day per week (Holland) |
?, ?, Holland |
| Events e.g. Conferences, congresses, symposia |
? |
| Other |
Peer review |
Holland |
| Journal clubs |
Ireland |
| 7. Specialist role of haemophilia nurse |
Self directed learning e.g. self driven specialisation |
All |
| Courses e.g. Contemporary Care Course (UK); MSc (UK); aiming to build a specialist haemophilia nurse diploma (Germany) |
UK, Germany |
| Learning on the job e.g. Daily routines, co-ordinating surgery, supervision of bleeds by haematologist (?); Co-ordinating patient care (Ireland); Access to mentors and roles models (Estonia); Observation of other professions e.g. physicians, physiotherapists, laboratories (Spain); Patient Association events and good working relationship (Spain, UK); Listening to patients (Spain) |
Spain, ?, Netherlands, Ireland |
| National Guidelines e.g. nursing code of practice, revalidation and accreditation, competency framework |
UK |
| Events |
Advisory boards, EAHAD, WFH, |
Spain, Ireland, Netherlands |
| Annual nurse meeting
|
Netherlands |
| Other e.g. Educating multidisciplinary teams about haemophilia |
Ireland |