Recents
Sticker charts, school trips and severe haemophilia A — Debbie’s story (part 2)
Learning to treat her son Jamie* (*a pseudonym) prophylactically after his diagnosis with severe haemophilia A was a major step…
ITP Awareness: Shining a light on immune thrombocytopenia
Did you know that this week (22-28 September 2025) is the tenth Global ITP Awareness Week? Every September, ITP patient…
A diagnosis of severe haemophilia means my son gets treatment — Debbie’s story (Part 1)
In the first of a two-part blog, Debbie shares her experience of her son, Jamie, having an unexpected diagnosis of…
Virtual haemophilia care — What do the experts say?
Community advocate Rich Gorman comments on a recent paper discussing virtual care for haemophilia, published in The Journal of Haemophilia…
Raising girls with Type 2A von Willebrand disease (part 2)
In the second part of their blog about family life, Alex and Jo talk about how they approach raising girls…
Raising girls with Type 2A von Willebrand disease (part 1)
In the first part of a two-part blog about their family, Alex and Jo discuss how they feel about having…
A long life with haemophilia: Terence’s tale and the power of storytelling
When Terence O’Rourke sat down with Dr Meila Roy of the Southern Haemophilia Network to talk about living a long…
International Nurses’ Day – We need more nurse research
On International Nurses Day 2025, Dr Kate Khair discusses the important contribution that bleeding disorders nurses make to research.
Women and girls bleed too – “Whatever they do for a male, do it for her”
17th April is World Hemophilia Day, and the theme for 2025 is “Women and Girls Bleed Too”. The disparities in…
Caring for boys with severe haemophilia A: a family journey (part 2)
Parents Lauren and Ben discuss the role that teamwork and trust have played in their family journey with haemophilia A
Accelerating action for women who bleed
For International Women's Day 2025, we highlight the need for equity of care for women with a bleeding disorder
Rarer than rare: Glanzmann thrombasthenia in Nigeria
On Rare Disease Day 2025, we share the story of an inspirational young woman from Nigeria with Glanzmann thrombasthenia