Did you know that this week (22-28 September 2025) is the tenth Global ITP Awareness Week? Every September, ITP patient…
In the first of a two-part blog, Debbie shares her experience of her son, Jamie, having an unexpected diagnosis of…
Community advocate Rich Gorman comments on a recent paper discussing virtual care for haemophilia, published in The Journal of Haemophilia…
In the second part of their blog about family life, Alex and Jo talk about how they approach raising girls…
In the first part of a two-part blog about their family, Alex and Jo discuss how they feel about having…
When Terence O’Rourke sat down with Dr Meila Roy of the Southern Haemophilia Network to talk about living a long…
On International Nurses Day 2025, Dr Kate Khair discusses the important contribution that bleeding disorders nurses make to research.
17th April is World Hemophilia Day, and the theme for 2025 is “Women and Girls Bleed Too”. The disparities in…
Parents Lauren and Ben discuss the role that teamwork and trust have played in their family journey with haemophilia A
For International Women's Day 2025, we highlight the need for equity of care for women with a bleeding disorder
On Rare Disease Day 2025, we share the story of an inspirational young woman from Nigeria with Glanzmann thrombasthenia
Parents Lauren and Ben discuss early struggles with haemophilia treatment, and overcoming fear, stress and anxiety