What does Haemnet do?
Education and training
Continued education and support empowers professionals within the community to become skilled specialists. Haemnet offers a range of bespoke training programmes, each designed to support professionals at different points in their careers.
The Contemporary Care of People with Bleeding Disorders training course is designed for novices in haemophilia care; for more advanced practitioners we offer a series of educational update sessions. The ASPIRE leadership development programme is geared towards those who wish to lead service change, and is complemented by a range of specialist workshops that focus on public speaking, presentation skills, scientific writing and conference preparation.
Each Haemnet programme has been developed in collaboration with highly experienced and recognised healthcare professionals and expert consultants, and each is continuously updated and adapted to account for the rapidly changing landscape.
At a time of rapid treatment developments and advances in care, understanding and measuring the lived experience of people affected by bleeding disorders is ever more important.
We conduct in-depth qualitative, patient and family-focused research that provides crucial insight in to the impact of treatment interventions on living with a bleeding disorder. We are uniquely positioned to conduct such research through collaborative efforts between our expert researchers, healthcare professionals and community advocates. Throughout our experience conducting studies, we have witnessed the passion and desire of community members to contribute to research. We have harnessed this energy to create a community of individuals committed to driving research in bleeding disorders. This enables us collect qualitative data through 1-2-1 interviews, focus groups and detailed surveys.
The bleeding disorders community is a melting pot of ideas and experiences.
Healthcare professionals, people with bleeding disorders, carers, advocacy groups, industry partners… everyone has a voice that needs to be heard. Haemnet creates and facilitates opportunities for all stakeholders to contribute their insights. From steering groups and educational meetings to publications in The Journal of Haemophilia Practice, we are committed to providing platforms for people in the community to share their knowledge and experience.
Research reports, scientific publications, articles, videos and animations…these are just a few examples of the content Haemnet produces.
We do a lot of “boots on the ground” work, from training programmes to research projects, but we understand the importance of creating tangible and engaging content in order to share our findings with the community.
From creating patient-friendly educational animations and online educational resources for HCPs, to community focus articles and conference publications, we create content for all areas of the bleeding disorders community.