Recents
Animating self-advocacy for the bleeding disorders community
If you live with a bleeding disorder, self-advocacy isn’t just important – it’s vital. As a group of people who…
Caring for boys with severe haemophilia A: a family journey – part 1
In the first of two blogs about having boys with severe haemophilia A, parents Lauren and Ben discuss early struggles…
Caring for boys with severe haemophilia A: a family journey – part 2
In our second blog about Lauren, Ben and their family, they focus on the role that teamwork and trust have…