Recents
Shared decision-making and haemophilia gene therapy
Shared decision-making is a catchy piece of language – and it increasingly feels like it’s everywhere when it comes…
Discussing the possibility of being a haemophilia carrier
In a fascinating paper, recently published in The Journal of Haemophilia Practice, Keiko Nozaki and Akemi Yamazaki explore how families…
Contaminated blood: exploring the intergenerational impact
There is much to say about the contaminated blood scandal of the 1970s and ‘80s. It devastated the bleeding disorders…
Animating self-advocacy for the bleeding disorders community
If you live with a bleeding disorder, self-advocacy isn’t just important – it’s vital. As a group of people who…
Caring for boys with severe haemophilia A: a family journey – part 1
In the first of two blogs about having boys with severe haemophilia A, parents Lauren and Ben discuss early struggles…
Caring for boys with severe haemophilia A: a family journey – part 2
In our second blog about Lauren, Ben and their family, they focus on the role that teamwork and trust have…