Recents
Reflections on WFH 2016 as Team GB prepares for Glasgow!
So, WFH 2016 is now a memory, but before it fades we asked some of those who attended from the…
What does it mean to be a haemophilia nurse?
Earlier this year, members of the UK’s haemophilia nurse community all provided ideas on what it means to be a…
The Platelet
Ladies and Gentlemen, fresh from her starring role opening the HNA conference in Manchester, I give to you the latest…
More data, if not clarity
It was probably one of the most hotly anticipated sessions of EAHAD 2016. Saturday afternoon the meeting concluded with a…
Awareness rising, testing possible … now for the politics
Saturday was patient camp day and the day on which those people tested yesterday would receive their diagnoses. After negotiating…
It’s screening day – so why are there goats?
Well, it’s not everyday you stroll around the grounds of a national teaching hospital and encounter a herd of goats.…
On the road to coordinated haemophilia care – in African time
Despite the best attempts at planning, everything in Uganda runs to Africa time. Especially when it rains. The first training…
“They just want to go to school and be pain free”
Tuesday mid-morning we headed out of Kampala to meet a family with three boys with haemophilia. Agnes had first spoken…
Uganda opens its eyes to haemophilia care
Driving in from Entebbe to Kampala, you learn very quickly to keep your eyes closed. It’s a free for all,…
Are we transforming transition?
My head is reeling from all of the bright ideas and madness floated at yesterday’s Transforming Transition workshop in Birmingham.…
Marvellous nurses serve up bangers for cash
Last week, as the country was preparing for fireworks, Haemnet experienced a spectacular display of the innovative projects underway as…
Physios say “get fit and active”
Jenna Reid writes … As a Physio working in haemophila I started to notice that a number of our “sporty”…