Recents
Reflections on the art and risks of conference planning
So when one of the industry delegates asked over dinner if conference organising was my main job, I had to…
How do you see the future of haemophilia nursing?
Last year, we asked HNA members to complete a Survey Monkey questionnaire that aimed to reveal more about members, their…
Of tortoises, hares, and future hopes and fears
Good report in Nature Medicine this week summarizing how the future landscape in haemophilia care is likely to change as…
We all need suspicious minds
What do you think when a patient presents to your clinic with blood in the urine? Do you think bleeding…
How well do your patients take their treatment?
“Treatments don’t work in people who don’t take them.” Seems obvious doesn’t it? According to the World Health Organization, research…
Caring for boys with severe haemophilia A: a family journey – part 2
In our second blog about Lauren, Ben and their family, they focus on the role that teamwork and trust have…
Caring for boys with severe haemophilia A: a family journey – part 1
In the first of two blogs about having boys with severe haemophilia A, parents Lauren and Ben discuss early struggles…
Why mixed methods matter in bleeding disorders research
From clinical trials to observational studies, people with bleeding disorders are often included in research. There’s no denying that this…