Recents
Raising girls with Type 2A von Willebrand disease (part 1)
In the first part of a two-part blog about their family, Alex and Jo discuss how they feel about having…
A long life with haemophilia: Terence’s tale and the power of storytelling
When Terence O’Rourke sat down with Dr Meila Roy of the Southern Haemophilia Network to talk about living a long…
International Nurses’ Day – We need more nurse research
On International Nurses Day 2025, Dr Kate Khair discusses the important contribution that bleeding disorders nurses make to research.
Women and girls bleed too – “Whatever they do for a male, do it for her”
17th April is World Hemophilia Day, and the theme for 2025 is “Women and Girls Bleed Too”. The disparities in…
Caring for boys with severe haemophilia A: a family journey (part 2)
Parents Lauren and Ben discuss the role that teamwork and trust have played in their family journey with haemophilia A
Accelerating action for women who bleed
For International Women's Day 2025, we highlight the need for equity of care for women with a bleeding disorder
Rarer than rare: Glanzmann thrombasthenia in Nigeria
On Rare Disease Day 2025, we share the story of an inspirational young woman from Nigeria with Glanzmann thrombasthenia
Caring for boys with severe haemophilia A: a family journey
Parents Lauren and Ben discuss early struggles with haemophilia treatment, and overcoming fear, stress and anxiety
Blue Monday, I wish it were Sunday – working with a bleeding disorder
Haemnet's CEO reviews a recent pilot study on how having a bleeding disorder impacts working life
Living a new normal: a mum’s experience of Type 3 von Willebrand disease
Anna discusses her experience of adapting to a different way of life following an unexpected diagnosis
Women and Glanzmann thrombasthenia: GT360
Through affected in roughly equal numbers, our study findings suggest Glanzmann thrombasthenia impacts women more than men
Life with Glanzmann thrombasthenia – Results from our GT360 study
Our GT360 study is the largest study to date exploring the lived experience of Glanzmann thrombasthenia