April 8, 2019

Bleeding disorders and employment

Two recent studies have explored how having a bleeding disorder affects employment. In the Netherlands, a survey of 94 young adults (mean age 24) with an inherited bleeding disorder (74% haemophilia) found that 75% were in paid employment averaging 30 hour per week (Haemophilia 2019 Mar 12. doi: 10.1111/hae.13698). Of these, impairment at work was reported by more than a quarter. Being older and having a less severe type haemophilia was associated with higher odds of having a paid job.

In Canada, the limitations imposed by a bleeding disorder were a strong influence on employment choices: 47% per cent of 75 survey respondents said the negative impact of haemophilia was small, 27% described it as moderate, and 13% said it was very large (Haemophilia 2019 Feb 28. doi: 10.1111/hae.13701). Two-thirds said that vocational advice from their treatment centre would be helpful, though only half that proportion had actually received any.