May 8, 2019

What people with haemophilia want from their treatment

A study from Canada reports that people with haemophilia A would like to administer their factor replacement without needing an intravenous infusion and they want longer-lasting factors (Haemophilia 2019 Apr 23. doi: 10.1111/hae.13754).

Interviews and focus groups involving 20 people with haemophilia A without inhibitors and caregivers revealed that having intravenous infusions, coordinating treatment schedules and being sure of having enough medication and accessories are challenges that affect psychological well-being, work opportunities and adherence to treatment. The prospect of greater convenience offered by extended half-life factors looks likely to be an important determinant of treatment choice.