Recents
Connections, community and von Willebrand disease
Recently, members of the Haemnet team took part in a collaborative event for the von Willebrand's community
Peer reviewers, we salute you! – Peer Review Week 2024
In the world of journal publishing, peer review is used to decide whether a paper is suitable for publication
Family trees and factor – haemophilia education in Nigeria
Haemnet’s Director of Research, Kate Khair, recently travelled to deliver haemophilia education in Nigeria to support improved rates of diagnosis.…
Eduard and Erik need apostrophes – or Pedants “R” Us
On International Apostrophe Day, Haemnet’s CEO, Mike Holland, muses on the naming of bleeding disorders When it comes to writing,…
On von Willebrand disease, community, and being the voice of the voiceless
Sunny Maini talks about using his experience of von Willebrand disease and a successful corporate background to nurture an empowered…
From haemophilia hero to ecology zero: Luke’s new chapter
Back in the 2011, I received an invitation to participate in a focus group for young people with haemophilia. The…
Listen and learn like a legend
Vincent van Gogh cut one off in a rage, but Dr Kate Khair’s grandfather’s knew that Voltaire was on to…
Gene therapy for haemophilia B in the UK? Hold your horses!
After years on the track, gene therapy for haemophilia seems to have the home straights firmly in sight. Products for…
Spotting the red flags – in patients and in ourselves
Haemophilia Nurses Association Annual General Meeting, Birmingham March 29th/30th 2019 The Centre for Mental Health (CMH) is a charity that aims…
Caring behind bars
Haemophilia Nurses Association Annual General Meeting, Birmingham March 29th/30th 2019 We hope that most of the haemophilia nurses attending the…
Contaminated blood – lessons for our future
Haemophilia Nurses Association Annual General Meeting, Birmingham March 29th/30th 2019 When Maureen Fearns, a nurse working at the haemophilia centre in…
Not in the job description: On the Spectrum
Haemophilia Nurses Association Annual General Meeting, Birmingham March 29th/30th 2019 People with autism spectrum disorder (ASD) can find the demands…