Gene therapy for haemophilia
New technologies for the treatment of haemophilia offer a future with better control of bleeding, fewer long term complications, a lower treatment burden and, in the case of gene therapy, the prospect of a life largely unaffected by the risk of spontaneous bleeds. They also bring challenges, with major change in the expectations of people …
Personal Resilience – video series
Everyone who works in healthcare knows that challenging events and behaviours are part and parcel of the everyday experience. We all have days when these can get too much. A few years ago at the HNA conference we asked people to give us examples of how they had bounced back from difficult or stressful situations …
London 2020: A Haemnet Consultation Exercise
The UK has an enviable reputation for high quality haemophilia services and pathways for patients. These services face both opportunities and challenges from: the growing range of haemophilia treatment options; the expectation of greater choice for patients and their engagement in the self-management of their condition; and the continuing goal of clinicians to improve clinical practice while the health …
Staying active: online support for haemophilia care professionals
That we are living in difficult times is an understatement. Many of us are adapting to the challenges associated with new ways of working, which adds to the stresses that we all face. It is important that we care for ourselves and those around us, physically as well as mentally. Being physically active means sitting down …
Support for haemophilia care professionals through the pandemic
The HNA was formed in the early 1980s to provide support for haemophilia nurses in difficult times. The COVID-19 pandemic means that once again we are living through challenging times. It has placed unprecedented demands on staff working in haemophilia care. Many professionals are now reviewing patients either by telephone or through web-based communications platforms. Some …
The HNA Terms of Reference (July 2018)
MISSION, MEMBERSHIP AND PURPOSE The Haemophilia Nurses Association (HNA) is a specialist group representing nurses who care for patients with bleeding disorders in the UK and Ireland. Membership is open to any nurse within the UK and Ireland who works principally with patients with bleeding disorders, whether providing direct care or engaging in research. The …
The HNA Competency Framework: The Detail
Table 1: CREST topics and associated levels of competence Level 1 Level 2 Level 3 Level 4 COMMUNICATION Haemophilia Multi-Disciplinary Team Demonstrates understanding of the role of team members and communicates appropriately. Is able to observe and report accurately Presents cases and raises issues within the team Initiates and leads team discussions Liaison and …
Join for AccessThe HNA Competency Framework
The role of the nurse continues to develop, probably at greater speed than ever before. In many countries, nurses are able to manage whole episodes of patient care from diagnosis, through admission, requesting investigations, prescribing treatments and evaluating outcomes. While nurses can and do, do most things, what is important is that they are appropriately …